Case Study:
Sickle Cell Disease Association of America (SCDAA)

About the Client

The Sickle Cell Disease Association of America (SCDAA) provides advocacy, education, research, and support for individuals and families affected by sickle cell disease nationwide. With thousands of patients, caregivers, and healthcare providers depending on their resources, SCDAA needed a stronger digital infrastructure to deliver critical information, expand its reach, and build professional capacity among community advocates.

The Process

We partnered with SCDAA to design and implement a modern, accessible digital ecosystem:

  1. New SCDAA Website
    • Centralized hub for SCDAA’s mission, events, resources, and donation campaigns.
    • Designed with WCAG accessibility standards.
      Visitsicklecelldisease.org
  2. Digital Health Resource Library
    • Searchable, mobile-friendly platform with curated articles, guides, and resources.
      Exploresicklecelldisease.net
  3. SCDAA Clinical Trial Finder App
    • Developed for Android and iOS.
    • Allows patients and caregivers to easily locate nearby clinical trials.
  4. Community Health Worker (CHW) Training LMS
    • Built a dedicated Learning Management System at chwtraining.sicklecelldisease.org.
    • Provides comprehensive online skills training and professional development for CHWs.
    • Combines classroom-style modules with hands-on training opportunities.
    • Supports SCDAA’s mission of preparing advocates for gainful employment and leadership in the sickle cell community.

Since launch, SCDAA has seen measurable improvements:

Increased Accessibility

Increased Accessibility: Patients and caregivers now have centralized, easy-to-navigate health resources.

Improved Engagement

Improved Engagement: The Clinical Trial Finder app has connected patients with critical studies.

Boosted Awareness & Donations

Boosted Awareness & Donations: Streamlined donation features and modern design encourage support.

Stronger Digital Identity

Stronger Digital Identity: SCDAA now presents a consistent, mission-driven online presence.

Empowered Workforce

Empowered Workforce: The CHW Training LMS is producing skilled advocates and healthcare workers, expanding SCDAA’s ability to reach and serve communities.

Project Highlights

New SCDAA Website

New
SCDAA Website

Digital Health Resource Library

Digital Health
Resource Library

SCDAA Clinical Trial Finder App

SCDAA Clinical
Trial Finder App

Community Health Worker

Community Health Worker
Learning Management System